It was a proud day for Stacy Velasquez the Executive Director of OTRANS Reinas de la Noche in June as she opened the doors to the community clinic that had just been officially approved as a health post by the Ministry of Public Health and Social Assistance. This meant that a full-time doctor was now in position.  

Around 40 transgender women and sex workers have come to the clinic since the doctor's arrival. The clinic has existed for several years, but with the approval by the Ministry of Health and financial support from the Global Fund and OXFAM, patients now have access to comprehensive care: HIV prevention and diagnosis; prevention, diagnosis and treatment of sexually transmitted infections; psychosocial counselling; medical consultations including hormone therapy; a laboratory service for sexual health testing and a pharmacy.

The clinic offers pre-exposure prophylaxis (PrEP), a biomedical intervention within the combination prevention approach, which refers to the use of antiretroviral drugs by HIV-negative individuals to reduce the risk of contracting the virus.

"In 2016, a comprehensive health strategy for trans people was approved with technical support from UNAIDS. It includes a manual of guidelines for the health care of trans people,” said Stacy. “The community clinic and this strategy are the fruit of the work of almost 18 years of advocacy by the trans community."

OTRANS contributes to the Centro de Documentación y Situación Trans de América Latina y el Caribe (CEDOSTALC), a community-based system for collecting information, monitoring and responding to human rights-related barriers faced by the transgender population in 26 countries in Latin American and the Caribbean.

In Guatemala, transgender women still face exclusion, discrimination, stigma, verbal and physical violence, criminalization, marginalization and a lack of recognition of their rights, resulting in a life expectancy of only 35 to 40 years old. The average life expectancy in the country is 74 years old.

During a visit to the clinic, UNAIDS country director, Marie Engel praised the work of the site and paid tribute to Andrea Gonzalez, the OTRANS legal representative who was murdered in 2021.  

“In Guatemala, the HIV prevalence rate is 22.2% among the transgender population, compared to 0.2% for the general population,” said Ms Engel. “And although new HIV infections declined by 23% among all women between 2010 and 2019 globally, they have not declined among transgender women. And yet, transgender people have less access to HIV services than the rest of the population.”

Stigma and discrimination have a profound negative effect on the mental health of transgender people, which in turn can influence their vulnerability to HIV infection. Data reported to UNAIDS in recent years show that the percentage of transgender people who avoid seeking HIV testing due to stigma and discrimination ranges from 47% to 73%.

Imagine being widely blamed for tragedies that befall your country. Earthquakes. Hurricanes. Floods.

Now imagine being excluded from disaster response efforts because of this.

Lesbian, gay, bisexual and transgender (LGBT) people in Haiti face profound prejudice. Discrimination often undermines life chances. Education and employment opportunities erode. Even accessing healthcare can be difficult.

Founded in 1999, the SEROvie Foundation pairs health promotion for the LGBT community with human rights advocacy and socioeconomic empowerment. Today the organization operates projects in nine geographical departments.

UNAIDS supports SEROvie to ensure that the needs of key population communities are addressed during disaster responses. This intervention ensures people living with HIV continue to receive HIV treatment and have timely access to aid. Beyond the emergency phase, beneficiaries get support to resume generating incomes and reintegrate into their homes. They also receive psychosocial support to cope with grief and trauma.

In 2016 SEROvie founded the J.C Ménard Clinic in Port au Prince. This clinic serves LGBT people and other key populations including female sex workers and their clients. Here SEROvie has distilled more than two decades' experience in providing health and social support into a complete service package.

With the assistance of several collaborators including the U.S. Agency for International Development (USAID), J.C Ménard offers a range of free-to-user services addressing gender-based violence, stigma and discrimination, family planning and HIV prevention, including PrEP. It also provides HIV, STI and TB treatment and care. 

At the in-house laboratory, technicians manage both diagnostics and treatment monitoring. They track individual journeys from positive test to viral suppression. Over the last year the clinic provided facility-based HIV testing for 6,000 people and supported HIV treatment management for over 1,500 clients. Apart from dispensing patients' medicines, the clinic coordinates with other treatment facilities to ensure there are no stockouts and drugs do not expire.

Social workers conduct individual assessments to determine clients' needs. Psychologist, Darline Armand says the most important moment in her work is the first interaction after someone has been diagnosed.

"They need to feel safe," she says.

Peer Supervisor, Gregory Jacques, explained that the clinic employs both peer education and peer navigation as strategic approaches. Educators engage clients about relationships, risk and safety, providing accurate information. Navigators are themselves people living with HIV who walk others through the treatment and care process.

"The thing that makes a difference is that they know you are just like them," one navigator explains.

In the community room clients learn about health and relationships through fun activities. This is also where they meet for support groups and dialogues.

The Monitoring and Evaluation team measures programme performance with painstaking detail. They track everything from the number of people living with HIV identified through index testing to the number of sensitization sessions conducted with Voodoo priests. Over the past year more than 15,000 people received awareness-raising messages on HIV, GBV, stigma and discrimination from the clinic. Over 1,500 people benefit from comprehensive HIV care and treatment services while more than 1,500 are on PrEP.

Steeve Laguerre, SEROvie's co-founder, reflects on the organization’s journey with both awe and clarity.

"The services we provide are entirely determined by the needs of the people we serve," he says. "We seek funding that aligns with their demands. The work is always client-driven." 

This client-centred approach is valuable for the wider Caribbean. According to the 2022 Global AIDS Update, In Danger, last year four of five new infections in the region were linked to key population communities and their sexual partners. At the same time, most of the funding for regional combination prevention activities with key populations comes from international sources. 

“Community-led strategies for patient care help reduce late diagnosis and loss to follow-up while improving treatment outcomes,” said Dr. Christian Mouala, UNAIDS Country Director for Haiti. “These approaches must be adequately resourced and integrated into the national response.” 

KALISITO BIAUKULA, GENENDIT, FIJI

What does International Youth Day mean to you? International Youth Day means highlighting youth voices and a call to action of our voices so that our point of view is integrated across programs and policies. In addition, there should be an emphasis on investing in youth-led organizations and supporting youth activism.

What does a world for all ages look like in the context of the HIV response? Young people should have a say or agency regarding decisions that affect their bodies and life. In the Asia Pacific region where I come from, there are many punitive laws and criminalizations. This fuels stigma and discrimination among young key populations and in my mind increases barriers to much needed HIV services.

We must ensure an intersectional, intergenerational and human rights-based approach to achieving gender equality and the empowerment of young people in all our diversities across the region. We fully recognize the principles of “Do No Harm” and “Leave No One behind.'' I cannot insist enough on consulting all communities in the region.

ERIKA DUPUIS, THE PACT, VICE-CHAIR, CANADA

What does International Youth Day mean to you? International Youth Day is a global celebration of young people’s contributions, innovations, and leadership. It is a day of celebration and reflection on how stakeholders can better sustain and strengthen youth movement-building.

What kind of activism are you doing? The PACT, a global coalition of over 150 youth-led and youth-serving organsaitions, has recently concluded another cycle of the Universal Periodic Review, where we have been supporting youth-led organizations to analyze and address current gaps in HIV response not only with young key populations, but across all generations. The UPR is a key mechanism for highlight human rights violations happening at the country level in the multilateral space, and through our partnership with Sexual Rights Initiative we have been harnessing intergenerational learning to ensure young people have their voices heard in this space too.

What does a world for all ages look like in the context of the HIV response?  A world for all ages in the context of the HIV response is the understanding and promotion of intergenerational solidarity and partnerships to guide future community-based activism.

CHINMAY MODI, GLOBAL NETWORK OF YOUNG PEOPLE LIVING WITH HIV (Y+ GLOBAL), INDIA

What does International Youth Day mean to you? International Youth Day is the day when young people are the ‘cherry on the cake’ and we hear a lot of noise about young people globally. It is the day when all partners recognize youth and their contributions to the world. It is our day of visibility. Our day to sensitize the world on the issues affecting us and our day to showcase the work we have done as youth.

What activism are you doing at Y+ Global?  As a global network of young people, we are tasked with advocating against issues that adolescents and young people living with HIV face including various groups. We design, plan and execute campaigns that raise awareness of the issues faced by young people and hold global leaders and health institutions accountable. We partner with country networks of young people living with HIV and support them in developing their advocacy strategies while also sourcing for small grants to support  capacity-strengthening efforts. We embrace unique adult youth partnership models by advocating for slots for young people in key decision-making spaces such as the Global Fund Country Coordinating Mechanism (CCMs) and the delegations to the Global Health Institutions.

What does a world for all ages mean to you? A world for all ages is a world where young people are not only treated as beneficiaries but as key stakeholders. A world where we have access to equal opportunities to contribute to the HIV response in a fully funded space that is full of trust and investment in youth leadership. It is a world where youth are leading the response in tackling youth issues.

FEDERICO VILLALBA, J+LAC, NATIONAL COORDINATOR, ARGENTINA

What does International Youth Day mean to you? International Youth Day is a celebration of the joint efforts made by organized youth in civil society at the international level to improve the world we live in. This day is a recognition of our power to transform our society and also to leverage our needs into realities 

What kind of activism are you doing?  The Argentine Network of Positive Youth and Adolescents (RAJAP) is an organization of young people living with HIV throughout Argentina. Since its founding in 2009, it has built a nationwide platform that reaches more than a thousand members ages 14 to 30. Its main mission is to create a safe space for all adolescents and young people living with HIV+. We support, train and teach people about their rights as well as do advocacy around HIV.

This year’s theme is ‘Intergenerational Solidarity: Creating a World for All Ages’, what does that mean to you? Although our work and efforts focus on young people and adolescents, intergenerational dialogue seems fundamental to us so that our present objectives are informed by the experiences of young people. As you know there are cross-cutting problems such as stigma and discrimination so intergenerational dialogue is very important not only to carry over past knowledge but for the sustainability of our organization in the medium and long term.

What is your hope regarding the future? I wish for a world in which older adults are not perceived as a social risk and where public policies are clearly oriented towards their care and meeting their needs, if not most of the time informal care networks is usually taken care of by women. Basically, I would like a world in which older adults are not made invisible and they are not perceived as asexual. Ultimately, it would be a world where there is no age bias in which we can join forces and work together for a better world.

We do not need to accept pandemics as fate, experts gathered at the International AIDS Conference concurred. By taking specific, well-evidenced, concrete actions to tackle the inequalities driving them, today’s health threats can all be overcome.

As the latest data reveals that progress in the HIV response is stalling, putting millions of lives in danger, as the COVID-19 crisis drags on, and as Monkeypox presents new risks,  all are being held back by inequalities, and all three viruses are in turn further exacerbating those inequalities. However, a focus on tackling underlying drivers of pandemic risk can enable a successful response, scientists, economists and heads of AIDS programmes concurred.

“There are Monkeypox vaccine doses in Europe but none in Africa. Most people at risk of dying from COVID-19 in lower-income countries have still not received a COVID-19 vaccine. New game changing prevention medicines for HIV will not be widely available in lower income counties for years unless there is a dramatic course correction,” said Winnie Byanyima, Executive Director, UNAIDS, and Under-Secretary-General of the United Nations. “An effective response to disease outbreaks and pandemics means tackling inequalities. That means empowering women and girls to shift power relations between men and women. It means tackling inequalities in access to health services between rich and poor. And it means removing punitive laws that push away from life-saving services LGBTQI+ people, people who use drugs, and sex workers.” 

The application of scientific advancements is currently being undermined by inequalities, delegates at the International AIDS Conference noted.  They recalled how, at the turn of the millennium, civil society and generic manufacturers teamed up to demand access to antiretrovirals  for people living with HIV and their victory against the odds helped save millions of lives. But whilst that battle was won, delegates highlighted that the overall process of research and development, innovation and how that translates into manufacturing, pricing and distribution has remained untransparent and heavily skewed to the interests of rich countries. This played out during the COVID-19 pandemic as tests, vaccines and now antivirals are widely available in rich countries while still scarce in lower-income countries. And now this is repeating again with Monkeypox. 

Inequality is not only about differential risks but is about cycles of power, the imbalance in how laws and policies are implemented, who is empowered by these policies, and who is disempowered. 

“The AIDS movement is one of the best examples of how groups of people experiencing intersecting inequalities can unite to overcome them, leading to millions of lives being saved,” said Professor Joseph Stiglitz, Nobel laureate in economics. “But those gains were not permanent. Now a heating world combined with systemic inequalities mean that new disease outbreaks are becoming more frequent and while technological advancement is important, if there’s not a serious move to tackle inequality, the pattern of prolonged pandemics will only continue.” Professor Stiglitz was speaking at the AIDS Conference’s flagship session entitled “How Inequalities Perpetuate Pandemics: Why We Need a New Approach to End AIDS.”

New HIV infections occurred disproportionately among young women and adolescent girls, with a new infection every two minutes in this population in 2021. The gendered HIV impact, particularly for young African women and girls, occurred amidst disruption of key HIV treatment and prevention services, millions of girls out of school due to pandemics, and spikes in teenage pregnancies and gender-based violence. In sub-Saharan Africa, adolescent girls and young women are three times as likely to acquire HIV as adolescent boys and young men. 

Worldwide, only half (52%) of children living with HIV have access to life-saving medicine, and the inequality in HIV treatment coverage between children and adults is increasing rather than narrowing.​

Racial inequalities drive HIV too. In the United Kingdom and the United States, declines in new HIV diagnoses have been smaller among Black populations than among White. In Australia, Canada and the United States, HIV acquisition rates are higher in Indigenous communities than in non-Indigenous communities. 

Sbongile Nkosi, Co-Executive Director of the Global Network of PLHIV stated “Our experiences to date remind us that responding to pandemics such as HIV and COVID-19 is not just about dealing with a medical condition, it’s also about the environment in which we live and how my social status will determine the care I receive. It means centering interventions around the needs of people, listening to people. When we talk about key populations, we tend to group people. But then we misunderstand inequalities. People live intersecting lives and inequalities affect them differently.” During the disruptions of the last few years, key populations have been particularly affected in many communities – with rising prevalence in many locations. UNAIDS data have shown increasing risk of new infections faced by gay men and other men who have sex with men (MSM) globally. As of 2021, UNAIDS key populations data show MSM have 28 times the risk of acquiring HIV compared to people of the same age and gender identity while people who inject drugs have 35 times the risk, sex workers 30 times the risk, and transgender women 14 times the risk.

Just as tackling inequalities has been key to progress in tackling HIV,  so it is in tackling COVID-19. But too many COVID-19 responses have ignored this. “We have failed to learn a lot of the lessons from HIV/AIDS in the way we responded to COVID-19. And we need to be honest about that and reflect on where we go from here,” noted Executive Director of the Global Fund, Peter Sands.

“It's time not only to know your gaps but to close those gaps,” said Ambassador John Nkengasong, US Global AIDS Coordinator and Special Representative for Global Health Diplomacy. 

Today’s inequalities are bleak. But the most important message is a hopeful one.  We know how to end AIDS by 2030 and also how to overcome Monkeypox, COVID-19 and other current and future health threats: when we tackle the inequalities which drive health risks, we can keep everyone safe.

UNAIDS

The Joint United Nations Programme on HIV/AIDS (UNAIDS) leads and inspires the world to achieve its shared vision of zero new HIV infections, zero discrimination and zero AIDS-related deaths. UNAIDS unites the efforts of 11 UN organizations—UNHCR, UNICEF, WFP, UNDP, UNFPA, UNODC, UN Women, ILO, UNESCO, WHO and the World Bank—and works closely with global and national partners towards ending the AIDS epidemic by 2030 as part of the Sustainable Development Goals. Learn more at unaids.org and connect with us on Facebook, Twitter, Instagram and YouTube.

In December 2021, Botswana became the first high HIV burden country to be certified by the WHO Global Validation Advisory Committee (GVAC) as having achieved a critical milestone along the path to eliminating vertical HIV transmission. As striking as what Botswana has achieved, however, is how it went about documenting this achievement—using the certification process as an avenue to empower women living with HIV and reinforce their fundamental rights.¹

Botswana is the first high HIV burden country to be certified for achieving the required indicators for the Silver Tier on the “Path to Elimination of HIV” criteria that were introduced in 2017. The Silver Tier requires an HIV case rate of fewer than 500 per 100 000 live births, a vertical HIV transmission rate of under 5% and the provision of antenatal care and antiretroviral treatment to more than 90% of pregnant women.

UNAIDS data show that over 95% of pregnant women in Botswana were receiving antiretroviral therapy in 2021, up from 77% in 2010. Vertical transmission rates were only 2.2%, down from 9.0% a decade earlier. According to a woman living with HIV in Kgalagadi South, “I have three children...I breastfed all three, and all of them were given medication for prevention of HIV.”

Botswana placed women living with HIV at the centre of the process of documenting the country’s prevention success. With the support of UNAIDS, the International Community of Women living with HIV oriented networks of women living with HIV to administer the human rights assessment tool to their networks in 10 of Botswana’s districts.² These networks led the process, and the Government of Botswana provided logistical support to ensure the engagement of women living with HIV within a safe space. Women living with HIV, who are represented on the National Validation Committee, also reviewed a draft of the national validation report.

GVAC validated that Botswana’s programmes and services to eliminate vertical HIV transmission are consistent with international, regional and national standards on human rights, gender equality and community engagement. As one woman living with HIV in Kweneng West remarked, “the nurses and health-care officers give the option for all to test-and-treat. It is always a clear choice, and not a forced one.”

95% OF PREGNANT WOMEN IN BOTSWANA WERE RECEIVING ANTIRETROVIRAL THERAPY IN 2021

The Botswana Ministry of Health, with the engagement of women living with HIV and the support of the Joint Programme, convened a workshop in May 2022 to foster partner and stakeholder involvement for ensuring that rights-based approaches are used to maintain the country’s Silver Tier certification—and its possible progression to the Gold Tier.

¹ As of December 2021, 15 countries and territories—Anguilla, Antigua and Barbuda, Armenia (HIV only), Belarus, Ber- muda, Cayman Islands, Cuba, Dominica, Malaysia, the Maldives, the Republic of Moldova (syphilis only), Montserrat, Sri Lanka, St Kitts and Nevis and Thailand—have been certified for eliminating vertical HIV and syphilis transmission. Countries apply using standardized criteria for the assessment of programme performance, data and laboratory sys- tems, and they ensure the integration of human rights, gender equality and community engagement under a process overseen by the United Nations Children’s Fund (UNICEF), UNFPA, WHO and UNAIDS.

² These included the Botswana Network of People Living with HIV (BONEPWA+), Bomme Isago (a local partner of the International Community of Women living with HIV) and the Botswana Network on Ethics, Law and HIV/AIDS (BONELA).

The path to elimination of vertical transmission of HIV

• PATH TO ELIMINATION VALIDATION
  • BRONZE: 90% antenatal care coverage (at least one visit), 90% HIV testing coverage among pregnant women, 90% antiretroviral treatment coverage among pregnant women living with HIV Case rate of new paediatric HIV infections due to MTCT^a of ≤750 cases per 100 000 live births MTCT rate <5%
  • SILVER: 90% antenatal care coverage (at least one visit), 90% HIV testing coverage among pregnant women, 90% antiretroviral treatment coverage among pregnant women living with HIV Case rate of new paediatric HIV infections due to MTCT of ≤500 cases per 100 000 live births MTCT rate <5%
  • GOLD: 95% antenatal care coverage (at least one visit), 95% HIV testing coverage among pregnant women, 95% antiretroviral treatment coverage among pregnant women living with HIV Case rate of new paediatric HIV infections due to MTCT of ≤250 cases per 100 000 live births MTCT rate <5%
• FULL VALIDATION: 95% antenatal care coverage (at least one visit), 95% HIV testing coverage among pregnant women, 95% antiretroviral treatment coverage among pregnant women living with HIV Case rate of new paediatric HIV infections due to MTCT of ≤50/100 000 cases per 100 000 live births MTCT rate <5%

Source: Adapted from: Global guidance on criteria and processes for validation: elimination of mother-to-child transmission of HIV, syphilis and hepatitis B virus. Geneva: WHO; 2021 (https://www.who.int/publications/i/item/9789240039360).

^a MTCT = mother-to-child transmission of HIV.

“This is the first time I feel comfortable expressing my true identity," said Yogi one of the youth festival participants in Bali, Indonesia. "I am currently involved in this youth festival, and I feel safe being among new friends who are in a similar situation as me," Yogi added. "I also received new information about HIV as well as gaining access to counselling services that are a comfort.” 

In a conservative country like Indonesia, sex is considered a taboo subject. Whether with parents, teachers or other adults, discussing sex and sexual health with young people is strongly discouraged. Accessing comprehensive information on sex and sexual and reproductive health and rights (SRHR) is even more challenging for young key populations, who do not have many safe spaces for discussion and are not adequately empowered with knowledge due to marginalization and discrimination.

Data shows that the level of knowledge on HIV and the level of comprehensive sexuality education (CSE) among adolescents in Indonesia are still very low. According to the 2017 Demographic and Health Survey (IDHS), 82% of women and 83% of men have heard of HIV and AIDS. Unfortunately, only 14% of women and men aged 15-24 have comprehensive knowledge of HIV. The lack of comprehensive knowledge about HIV contributes to the low demand for and access to HIV prevention and testing services, making it more difficult to curb new HIV infections in Indonesia.

“I gained access to HIV-related services only after I had been diagnosed, so I was feeling quite hopeless then," said a youth participant in a focus group discussion held by Inti Muda, the national young key population network. "I used to think that once you are infected with HIV, you will certainly die, so I used to feel scared seeking help by going to HIV services,” the participant added.

With the intention of addressing the challenges experienced by young key populations in accessing health information and services, Inti Muda and UNAIDS Indonesia, with support from the Government of Australia’s Department of Foreign Affairs and Trade (DFAT), initiated a series of Youth Festivals in various cities in Indonesia.

These festivals provided young key populations with a safe and comfortable space for collective discussion, expression and learning about issues important to their sexual health and well-being. The event not only included education about HIV and SRHR, it also provided opportunities for young people the to show off their talents while raising the topic of HIV and sexual and reproductive health and rights. Moreover, youth participants were able to access free HIV testing on site, with youth-friendly counselling free from judgment and discrimination.

“The festivals allowed us to bring out our talents in public speaking, poetry reading, and storytelling towards HIV and SRHR issues. This showed that we can be empowered, creative and have talents to be leveraged,” expressed Febri, another participants in the youth festival in Jakarta.

Having activities tailored for young key populations and connecting young people with their peers to learn about HIV and SRHR contributes to the HIV response in Indonesia, as young people who are informed about their bodies are more empowered to protect themselves from HIV. This is especially crucial in Indonesia where young people (15-24) account for almost half of new HIV infections in the country.

“Educational methods or outreach activities that are too conservative sometimes can make youth reluctant to actively participate,” explained Sepi Maulana Ardiansyah, National Coordinator for Inti Muda Indonesia.

From February to April 2022, youth festivals were successfully held in 7 provinces in Indonesia, including Jakarta, South Sulawesi, Papua, Bali, North Sumatra, East Java, and West Java. Over 700 young people from key populations participated in these festivals and 140 participants accessed HIV testing services provided by Inti Muda in collaboration with local health provinces and Primary Health Centres.

"As we want to reach more young key populations as targeted beneficiaries, it is crucial for UNAIDS to be able to listen and believe in the approach that is used by Inti Muda Indonesia as a partner that is youth-led. This is done to ensure that youth empowerment, participation, leadership as well as activities and approaches are meeting the needs of young key populations,” said Krittayawan Boonto, the UNAIDS Country Director for Indonesia.

"We are here, we are not giving up". These are the encouraging words of Thérèse Omari, an activist who has been involved in the fight against AIDS for more than 20 years within the Femme Plus organisation, of which she is the co-founder and National Director in the Democratic Republic of Congo.

Femme Plus, true to its motto "Positive Life", works to improve the quality of life of people living with HIV. "The objective is for our beneficiaries to live in harmony with themselves, with their environment and with their beliefs," explains Ms Omari. 

To this end, the organisation provides psychosocial support to people living with or affected by HIV through counselling, care and support services. Femme Plus also carries out numerous activities in communities to free people living with HIV from the burden of stigma. "There is still a lot to be done to change behaviours towards people living with HIV," says Ms Omari. In the Democratic Republic of Congo, HIV-related stigma is still very present, especially in community settings. "Many people living with HIV say they no longer participate in family gatherings and other events fearing discrimination. It is therefore essential that people who come to Femme Plus feel that they are considered normal people with rights and obligations," she explains. In order to raise awareness, the organisation runs workshops to provide communities with the knowledge to better support people living with HIV, without isolating them or treating them differently.

Ms Omari also deplores the persistence of stigma and discrimination in health care settings despite the numerous HIV-related trainings for health care workers. In particular, she receives testimonies from pregnant women who have tested positive for HIV in one facility and wish to give birth in another, fearing of being stigmatised and treated differently. This is problematic as it can be detrimental to the provision of appropriate care for the mother and baby.

Ending discrimination and ensuring that the rights of people living with HIV are protected is therefore one of Femmes Plus' priorities to help them assert themselves and make the right choices about their health. "We encourage people living with HIV to empower themselves, to speak up about their condition, for their own well-being," says Ms Omari. 

Ms Omari also raises other obstacles to the AIDS response. The lack of access to prevention and treatment, and the low rate of people with an undetectable viral load, are among the shortcomings of the fight against HIV in the Democratic Republic of Congo. "Not everyone has access to testing. There are still people with HIV who live in anonymity," warns Ms Omari.

To overcome this gap, Femme Plus works with community leaders to teach them how to stay healthy with HIV. Among other activities, it also engages with pregnant and breastfeeding women, providing them with the knowledge to protect their babies and thereby stop vertical transmission.

"As long as there are people who do not know their HIV status, who do not have access to treatment and who have not reached an undetectable viral load, the fight of Femme Plus will remain meaningful," insists Ms Omari.

She concludes by pointing out that the fight against AIDS in the Democratic Republic of Congo is taking place in a context where resources are limited. "The local population must be involved in psychosocial care and prevention activities to make HIV an electoral issue," she explains. While waiting for more substantial funding from the State and better traceability of funds, community-led services have a crucial role to play with people living with HIV. They are at the heart of the fight against AIDS, advocating for access to prevention and life-saving care, calling for respect for human rights and addressing the specific needs of their beneficiaries. Their support is therefore pivotal in meeting the challenges of the HIV response and ending AIDS by 2030.

Ms Martine Somda Dakuyo was 34 years old when she was diagnosed with HIV. The news, which she describes as traumatic, suddenly shattered all the hopes and plans of this mother of four. "I suffered a lot from the fear of dying prematurely and in deplorable conditions," she says. Despite a deep sense of anger and injustice, she finally came to terms with her status and even went public in the media to encourage people living with HIV to accept themselves and get help.

Today, with her treatments controlling her viral load and keeping her healthy, Martine can look forward to a happy and productive life. She is one of the pioneers in the fight against AIDS in Burkina Faso, having fought for nearly 29 years with the NGO Responsabilité Espoir Vie Solidarité (REVS+). This association, of which she is the initiator and President of the Board of Directors, works for the prevention of HIV, the care of people exposed to the virus and the promotion of their human rights.

"The fight against AIDS in West and Central Africa remains a health emergency," says Ms Somda. Although the HIV prevalence rate is 0.7% in Burkina Faso, Ms Somda asks us about the situation of key populations, who are more exposed to the dangers of HIV, and the reasons that lead to this sad reality. In particular, she mentions the political and security context in the region, proposed laws that discriminate against key populations and the low involvement of people affected by HIV in the fight against AIDS as obstacles to effective care.

In order to protect key populations from the dangers of HIV, Martine’s ambition is to provide universal access to prevention methods, which are a crucial aspect of the fight against AIDS.

"Focusing on effective access to health and rights for people in situations of social rejection and criminalisation is the challenge for the fight against AIDS," she says.

In order to achieve universal access to prevention, care and follow-up services, Ms Somda advocates, among other things, greater involvement of people affected by HIV in the development of national AIDS strategies, better recognition of actions carried out on the ground and the elimination of social and economic inequalities that fuel the epidemic.

In addition, Martine expressed concern about conservatism and cultural, religious and traditional pressures that lead to stigma and discrimination against people living with HIV.  This discrimination manifests itself in various forms; through verbal or physical attacks, threats, harassment, arbitrary arrests, she observes. Such behaviour is dangerous and represents a major obstacle to the fight against AIDS, as it discourages people living with HIV from seeking appropriate services. There is an urgent need to stop such violence in order to create a climate where the rights of people living with HIV are respected and protected. Establishing a more inclusive discourse, free of discriminatory and erroneous prejudices, will allow for a more effective response guided by values of respect, integrity and equality.

With this in mind, in 2015 REVS+ set up workshops and training for decision-makers, religious and customary leaders, health professionals, police and the media. The aim of these activities is above all to denounce stereotypes about people living with HIV and to put an end to discrimination.

"The contribution of community services to the response to HIV is well known and proven, as they complement the services offered by the public health system," explains Ms Somda. Ensuring the continuity of their activities and allowing the greatest number of people to benefit from them, is a necessity for effectively combating AIDS in the region. The resilience of networks such as REVS+, which ensured that prevention activities and care services for people affected by HIV were maintained, was one of the reasons why the impact of the COVID-19 pandemic on people living with HIV was minimised.

Finally, to ensure the effectiveness of the fight against AIDS in the region, and more specifically in Burkina Faso, Ms Somda hopes to see more funding that is "more field-oriented, aligned with policies, strategies and in line with the needs of marginalised groups".

Through this exchange with Martine Somda, we see once again that there is still a long way to go to end AIDS in the region. However, this goal is within reach if all actors in the HIV response work together to develop multi-sectoral strategies. Implementing measures to achieve universal access to prevention services, eliminating HIV-related inequalities and stereotypes, and better managing investments are key priorities for ending AIDS by 2030.

MONTREAL, 30 July 2022—More than two decades ago at the 13^th International AIDS Conference (IAS) in Durban, Nkosi Johnson from South Africa stood up as the first child to speak publicly about HIV.

”Hello, my name is Nkosi Johnson, I am 11 years old and I have full-blown AIDS,” he said in front of a packed auditorium.

“I get very sad when I think of all the other children and babies that are sick with AIDS. ​I just wish that the government could start giving HIV treatment to pregnant HIV+ mothers to help stop the virus being passed on to their babies.”

Since Nkosi’s call for help in 2000, remarkable progress has been made. In a decade, coverage of HIV treatment to prevent vertical transmission for pregnant women living with HIV has increased to 85% from 45% and there has been a 53% reduction in new child HIV infections.

Last year, Botswana became the first high-burden country to be certified by the World Health Organization (WHO) for achieving an important milestone on the path to eliminating vertical transmission of HIV from mother to child.

But it’s still not enough.

Global targets towards reaching an AIDS-free generation have been missed year after year. In 2020, there were 1.7 million children living with HIV globally, almost half (46%) of whom were not receiving life-saving HIV treatment. In the same year there were 150 000 new HIV infections among children.

On the sidelines of this year’s IAS conference in Montreal, UNAIDS, networks of people living with HIV, UNICEF and WHO, together with technical partners, PEPFAR and The Global Fund are launching a new Global Alliance to End AIDS in children by 2030. The Alliance will be co-created with the broad participation of stakeholders, national governments, implementing agencies, regional and country-based organizations, faith-based and community partners including women, children and youth living with HIV. The aim is to measure and coordinate progress towards the bold targets of the Sustainable Development Goals (SDGs) and mobilize leadership, funding and action to end AIDS in children by 2030 by tracking work globally, regionally, nationally and at community levels.

“It is unacceptable that children are lagging far behind adults in accessing HIV treatment and that progress on eliminating vertical transmission has stalled in recent years,” said Winnie Byanyima, Executive Director of UNAIDS.

“The committee of co-sponsoring organizations of UNAIDS has approved the Global Alliance to End AIDS in children by 2030, co-led by UNAIDS, WHO and UNICEF as a Global Strategic Initiative. We are united in our commitment to reach this goal,” she added.

Most of these new infections could have been prevented if adolescent girls and women had universal access to HIV testing, prevention and treatment services and the support they need to stay in prevention care or on HIV treatment throughout pregnancy and breastfeeding. In addition, stigma, discrimination, punitive laws and policies, violence and entrenched societal and gender inequalities hinder access to care for women, adolescents and children.

Renewed political commitment and leadership is needed to eliminate vertical transmission and end AIDS in children once and for all. The launch of a new Global AIDS Strategy in 2021 and the Political Declaration on HIV and AIDS provide an opportunity to redirect global attention and redouble efforts to end AIDS in children

On 24 February 2021, Ghana became the first recipient of a shipment of 600 000 COVID-19 vaccines under the COVAX initiative, a global effort to provide access to vaccination and curtail transmission of the virus in developing countries.

Joshua Appiah, who is living with HIV, was apprehensive about getting the Covid vaccine because he had been influenced by misinformation: “Some of what was circulating on social media frightened me. I was scared the jab would compromise my immune system and kill me!”. 

After coming to learn that it is a lack of vaccination which poses a threat to health, particularly for people living with HIV, Joshua is angry at those who have promoted “misleading stories about the vaccine, its effects, the motivations behind its creation”. That is why Joshua decided to play his part. In June this year, he became one of 40 Vaccine Champions to undergo COVID-19 vaccination advocacy training, aimed at reinforcing their capacity to spread positive messaging and debunk “fake news”, myths and lies in their discussions with local community members. In turn, the programme hopes to increase vaccine uptake in local communities and among people living with HIV at ART sites, as Ghana continues to battle vaccine hesitancy.

The two-day training for Vaccine Champions was organised by Hope for Future Generations (HFFG), in partnership with the National Association of Persons Living with HIV (NAP+) Ghana, Young Health Advocates Ghana (YHAG), and the Ghana Red Cross Society (GRCS), with technical support from the Ghana Health Service. This activity falls under the Partnership for Accelerated COVID-19 Testing (PACT) 2.0 project, supported by UNAIDS and funded by the Government of Germany.

For Joshua, the topics covered, such as public sensitization on COVID-19, debunking myths and misconceptions, developing effective communication strategies, investigating the role of Vaccine Champions and working with data collection tools, have been enlightening and have empowered him to spread the word on vaccine uptake. “I took particular interest in the sessions on COVID-19 vaccine myths and misconceptions. I am now convinced that vaccines do not contain microchips, nor render people infertile, and I also feel comfortable spreading scientifically sound facts among the communities I am in contact with.” 

In her opening remarks for the training in Accra, Executive Director of HFFG, Cecilia Senoo, described the current state of vaccine hesitancy as worrying, reinforcing the urgency of the project. She commended the Vaccine Champions for embarking on a “worthy cause” and encouraged the Vaccine Champions to remain devoted to their mandate. UNAIDS Ghana Youth Programs Officer, Eric Sinayobye, stated that, “vaccine hesitancy is a stumbling block to achieving mass immunity in Ghana, hence the need for Vaccine Champions to help educating members of the community”.

After the training, the 40 Vaccine Champions were deployed at ART sites and inside communities to provide education on the importance of getting vaccinated, as well as to help debunk myths surrounding the vaccines in the next three months. With funding from the Government of Germany, UNAIDS continues to work with the Africa Centers for Disease Control (Africa CDC) to strengthen community-led response against COVID-19 and HIV in Africa.