UNAIDS has launched a revamped transparency portal, open.unaids.org, which presents current data on how UNAIDS is working to end AIDS as a public health threat by 2030.

The portal features joint results, country-level information, financial reporting, donor contributions, indicator trends and detailed information on the achievements of the UNAIDS Cosponsors.

“This portal is part of our collective efforts to ensure that we strengthen our transparency, accountability and communications around how we work and what we achieve. It provides Member States, donors, partners and staff alike with an excellent and highly accessible resource,” says Gunilla Carlsson, UNAIDS Deputy Executive Director.

The UNAIDS transparency portal for the first time presents how UNAIDS is working with the International Aid Transparency Initiative (IATI). UNAIDS became an IATI publisher in late 2016 and since then has regularly been publishing the details of financial and programme information in a standardized format in the IATI registry.

UNAIDS’ commitment to being open and accountable has been demonstrated by efforts to share programmatic and financial data with the public since 2014, when the initial transparency portal was launched at UNAIDS’ first financing dialogue. Since then, the portal has presented all information on performance and financial reporting shared with the Programme Coordinating Board annually. Adoption of the IATI standard—a format and framework for publishing data—has been another important step in ensuring that data are accessible and available to all.

The portal can be accessed at https://open.unaids.org/.

The World Health Organization released the new International Classification of Diseases, ICD-11, on 18 June.

The new version no longer defines issues associated with transgender identity as a mental disorder. Instead, there are new categories of gender incongruence of adolescence and adulthood and gender incongruence of childhood, which are classified as conditions related to sexual health.

The ICD provides a holistic look at every aspect of life that can affect health and supports decision-making for programming services and the allocation of spending.

“A shameful history of pathologization, institutionalization, “conversion” and sterilization begins to come to a close,” said Mauro Cabral Grinspan, the Executive Director of GATE, an international organization working on issues of gender identity, gender expression and sex characteristics. 

Michel Sidibé, the UNAIDS Executive Director, welcomed the decision. “This is an important step to increase access to health services by transgender people,” he said.

According to the World Health Organization’s report Transgender people and HIV, transgender people are 49 times more likely to acquire HIV than all adults of reproductive age. They often face, from a young age, stigma, discrimination and social rejection in their homes and communities for expressing their gender identity. Such discrimination, violence and criminalization prevent transgender people from getting the HIV services they need to stay healthy.

Although the new ICD version will be presented for final approval at the World Health Assembly in May 2019, transgender activists are already working on the next steps, including the revision of the categories and definitions, as well as reception at the national level.

Mauro Cabral Grinspan said, “We will work with our allies to ensure effective implementation at the country level to improve regulations while ensuring full access to legal gender recognition and to gender-affirming health care.”

Absamov Mannap Kamilovich works as a peer consultant in a primary health-care clinic in the city of Osh, in southern Kyrgyzstan. Mr Absamov injected drugs for more than 20 years, but, after a period of community-based treatment, stopped injecting and started a new life.

After taking an HIV test in 2013, Mr Absamov was asked to work as a peer consultant for a newly formed multidisciplinary HIV team.

In 2014, the first multidisciplinary HIV teams started work in southern Kyrgyzstan. They include a specialist in infectious diseases or a family doctor, a nurse and a peer consultant. The teams aim to improve the quality of medical and social services for people living with HIV and their families and are based in local health clinics.

The multidisciplinary HIV teams are supported by a grant from the Russian Federation through a regional cooperation programme that is implemented by UNAIDS in partnership with the Araket Plus nongovernmental organization. Ten multidisciplinary HIV teams have now been formed in Kyrgyzstan.

Mr Absamov works with up to seven clients a day, who go to a local clinic where they can access a comprehensive package of medical services.

Mr Absamov says that initially many people were afraid to visit the clinics, as they feared stigma and discrimination from medical personnel. “I had to persuade them, explain that it is possible to get all the medical services they needed at the local clinic.”

Ainagul Osmonova, the project manager, believes that people living with HIV have developed a genuine trust for their peer consultants.

The teams have helped to get people living with HIV on antiretroviral therapy. In 2013, only 285 people newly diagnosed with HIV started antiretroviral therapy. With the support of the multidisciplinary HIV teams, by the end of 2017 that number had increased to 885 people.

The peer consultants help the teams to recruit people living with HIV into the programme and to provide them and their families with access to social support services, which includes a psychological help desk for families and children affected by HIV. The peer consultants are in close contact with family members of people living with HIV and community organizations.

The multidisciplinary HIV teams work in close contact with the AIDS Centre in Osh. By moving many services for people living with HIV to the clinics, the role of the AIDS Centre has changed to focus more on coordination, training and seminars for general practitioners and the clinics’ medical staff.

According to the UNAIDS Country Director in Kyrgyzstan, Meerim Sarybaeva, the transfer of the AIDS Centre’s services to the primary health-care level has increased the overall coverage of clients enrolled in HIV treatment, care and support programmes. “Our experience shows that we should not be afraid of change. All people living with HIV and members of their families need to be able to access services where they live and be able to receive them freely, without experiencing stigma and discrimination,” she said.

Mr Absamov says he enjoys his job. Thanks to him, many people living with HIV have stopped using drugs, have started antiretroviral therapy and adhere to their treatment.

In South Sudan, 7 million people are in need of humanitarian assistance and 5 million people need access to health services, including HIV prevention and treatment services. In this context, AIDS does not stand in isolation; rather, it is an entry point for social transformation. This was the message of Michel Sidibé, UNAIDS Executive Director, during his recent visit to the country.

“We all know the challenges that South Sudan is facing. But during this visit I have been humbled and impressed. I have seen that, despite challenges, when people on the ground are committed, anything is possible,” said Mr Sidibé.

While in South Sudan, Mr Sidibé signed a memorandum of understanding on the right to health in the education sector with the Ministry of Health, the Ministry of Education and Instruction and the South Sudan AIDS Commission. The agreement commits all parties to develop and implement a strategy in line with the UNAIDS Fast-Track approach and the Ministerial Commitment on Comprehensive Sexuality Education and Sexual and Reproductive Health Services for Adolescents and Young People in Eastern and Southern African, of which South Sudan is a signatory. 

In 2016, an estimated 200 000 people were living with HIV in South Sudan. In addition, only 10% of people living with HIV were accessing life-saving HIV treatment. Children are particularly vulnerable, with fewer than 1000 children living with HIV between the ages of 0 and 14 years on HIV treatment—5% of those in need.

To accelerate results in the AIDS response, James Wani Igga, the Vice-President of South Sudan, in the presence of Mr Sidibé, launched the 2018–2022 South Sudan National Strategic Plan on HIV and AIDS, which will provide a solid monitoring and evaluation framework for the implementation of the national AIDS response.

“Stigma often leads to discrimination and other violations of human rights that affect the well-being of people living with HIV. HIV-related stigma is compounded for those individuals who identify with already stigmatized groups, including sex workers and men who have sex with men,” said Mr Igga.

Mr Sidibé also discussed with Mr Igga how more can be done together to address HIV in South Sudan, with a particular focus on HIV among uniformed personnel as a key entry point. They discussed how the AIDS response can build resilience, protect rights and promote freedom from violence, peace and stability in South Sudan.

UNAIDS is remembering the life and work of Calle Almedal, UNAIDS Senior Adviser on Partnerships with Civil Society and Faith-Based Organizations from 1997 to 2007. He was born in Sweden in 1945 and died on 7 June 2018 following a long battle with cancer.

“Calle Almedal was an outstanding professional, a passionate advocate and a personal friend and colleague. His legacy lives on in the lives of people of faith and of no faith in every corner of the world,” said Michel Sidibé, the Executive Director of UNAIDS.

Mr Almedal pioneered UNAIDS’ work with a wide range of civil society groups. Through his work, new and innovative partnerships were forged that developed the capacity of partners to respond to the HIV epidemic. For example, he brokered a partnership between the Federation of the Red Cross and Red Crescent Societies (IFRC) and the Global Network of People Living with HIV that resulted in the IFRC’s offices offering space to newly formed country networks of people living with HIV.

However, he is best known for his work with the faith community. He championed the concept of AIDS-competent churches and was a passionate advocate for human rights and justice for people living with HIV. He also championed the rights of people on the margins of society, particularly people ostracized by faith communities.

A person of faith himself, Mr Almedal challenged faith communities to address issues inside their own communities that put people at risk of HIV before addressing issues outside of the community. Without this so-called in-reach work, he explained that the church would lose its credibility—he gave the same challenge to UNAIDS.

He worked in a way that drew people towards him. He was known for his quick wit, keen sense of humour and sharp critique—a combination of qualities that, along with his dedication, passion and drive, made his work in partnerships so successful.

Mr Almedal trained in nursing and public health and theology. Prior to joining UNAIDS, he served in Lebanon, the Lao People’s Democratic Republic, Mozambique, Thailand and Yemen with the Norwegian Red Cross.

Mother of five Regina Mateo shows us her home in Wau, South Sudan—a temporary shelter at the protection of civilians (POC) refugee site. She brought her family here to seek refuge from violence and instability in her village. However, Ms Mateo and her family are eager to return home as soon as it is safe to leave.

Everyone wants a safe place to call home. But, with conflict and violence ongoing throughout much of the country, that is too much to ask for many in South Sudan at the moment. The Wau POC holds a population of 20 880 people, but there are many other sites offering refuge. In Juba, the POC holds 39 405, in Bentiu 116 725, in Malakal 24 417 and in Bor 2296. Many people leave the POCs during the day to work but return at night from fear of violence at the hands of armed groups.

During his recent visit to Wau, UNAIDS Executive Director Michel Sidibé was welcomed by a network of women and girls living with HIV and representatives of service providers from the United Nations family and local government. He said, “With the collapse of health infrastructure and upheaval of entire communities in conflict zones, continuity of treatment and care has become difficult in the extreme. But the people of South Sudan are resilient. And this brings us hope.”

Mr Sidibé visited the Wau POC to better understand the living conditions of people who have been displaced as well as the services available to them. Living conditions are difficult, with limited basic services. Everyone is desperate for peace so that they can return home.

Despite these challenging circumstances, the United Nations family is working together to deliver basic services. A highlight is the delivery and stabilization units in health facilities supported by the International Organization for Migration and the United Nations Population Fund that serve both the people who have been displaced and the host community and which integrate HIV services as part of broader primary health-care services.

Survivors of gender-based violence are also able to access psychosocial support and clinical management of rape services. These services are available in part thanks to UNAIDS resources complementing resources from the Global Fund to Fight AIDS, Tuberculosis and Malaria.

Mr Sidibé met with the Governor of Wau, Angelo Taban, and, together with the State Minister of Health, they visited the Wau Teaching Hospital, where they met peer mentor mothers who are living with HIV but who have given birth to HIV-negative babies. The health personnel are doing tremendous work despite the tough working conditions.  

At the Juba Teaching Hospital, the South Sudan Network of People Living with HIV described the critical challenges many people are facing. “Many people living with HIV are lost to follow-up, due to the current crisis. Many of them are in the South Sudan bush, many others are on the move to neighbouring countries without medication. Those in towns are dying in silence due to poverty.” But hope is alive. A whole new generation of midwives are being trained, making real the right to health and non-discrimination in health facilities.

Despite all the challenges, from conflict to a collapsing health infrastructure, insufficient funds and unmet basic needs, the people of South Sudan are resilient.

The Government of Luxembourg has announced that it will renewal its €1 million contribution to UNAIDS for the western and central Africa catch-up plan, with the funds focused on paediatric care and treatment and human rights. Launched in December 2016, the western and central Africa catch-up plan aims to ensure that 4.5 million people living with HIV in the region will have access to HIV treatment by 2020.

Marc Angel, Chair of the Foreign Affairs and Development Committee in the Luxembourg Parliament and UNAIDS Champion for the 90–90–90 Targets, recently undertook a three-day visit to Burkina Faso, a beneficiary of last year’s contribution. Mr Angel met with leaders from the government and civil society organizations and witnessed first-hand the successes and challenges of Burkina’s AIDS response.

“I’m impressed by what I have seen, and I believe Burkina Faso is on track for achieving 90–90–90 and for the elimination of mother-to-child transmission of HIV. I encourage the government, civil society, community-based associations and other actors to do more to reach the last mile, so that AIDS is no longer a public health threat,” said Mr Angel.

Lucy Wanjiku is a young mother living with HIV and team leader of Positive Young Women Voices from Kenya. She was just 19 years old when she found out that she was living with HIV, a devastating shock for her. “It was one thing to become an adolescent mother and another to be HIV-positive,” said Lucy. “I was discriminated against by the community, my family and even at the health facility. There is no real support structure available.”

Ms Wanjiku’s story is a familiar one in sub-Saharan Africa. Around 6900 adolescent girls and young women between the ages of 15 and 24 years become newly infected with HIV every week—5500 of whom live in sub-Saharan Africa.

Ms Wanjiku is now using her voice to help others and raise awareness around the challenges that young women face in Kenya on a daily basis. At an event organized by UNAIDS at the European Union Development Days (EDD) forum in Brussels, Belgium, Ms Wanjiku gave the audience an alarming insight into issues around gender-based violence, early marriage, intimate partner violence, transactional sex, low school attendance rates and lack of economic empowerment, which are all key risk factors for HIV that young women and girls face every day.

“Support groups work,” said Ms Wanjiku. “Community-based organizations can facilitate this smoothly when supported. We need to engage more adolescent girls and young women leaders at the decision-making tables to tailor what works for us so that it’s sustainable.”

The event, entitled Empowering Women and Girls—Reducing New HIV Infections, highlighted the importance of empowering young women and girls to stop new HIV infections. Held on 5 and 6 June, the EDD forum was attended by more than 6000 people from 140 countries, representing 1200 organizations from the development community.

“Considerable efforts need to be taken to reach the Fast-Track Target of reducing the number of new HIV infections among adolescent girls and young women to below 100 000 per year by 2020,” said Tim Martineau, UNAIDS Deputy Executive Director, Programme, a.i. “The HIV Prevention 2020 Road Map, launched by UNAIDS, the United Nations Population Fund and partners in 2017, will be critical to guiding efforts and I cannot stress enough the importance of also engaging men and boys for long-lasting change.”

The event was moderated by Ebony Johnson, a public health and gender strategist, and brought together a wealth of expertise and experience from youth activists, people living with HIV, civil society and international development representatives.

Highlighting the importance of access to information, Melodi Tamarzians, a youth ambassador on sexual and reproductive health and rights from the Netherlands, highlighted that only 34% of young people have accurate knowledge about HIV prevention and transmission. “I believe in the infinite power of young people to make a change for themselves and their communities,” she said. “And they need access to comprehensive sexuality education, which is not only a key for preventing violence but has far-reaching individual and societal benefits.”

Winnie Byanyima, the Executive Director of Oxfam International, addressed policy barriers and reminded the audience that in order to enhance agency among young women and girls, there needs to be space for young people, especially women and girls, to take part in decision-making processes. She added that investment needs to be secure in order to strengthen economic empowerment to enhance women’s health. “Young women affected by HIV can be afraid of accessing health care because of a lack of confidentiality, discrimination and cost. We need to invest in peer education and free access to health care to empower women to protect their health,” she said.

UNAIDS, together with a wide range of partners, including women living with HIV and women’s organizations, works towards meeting the needs of girls and women across all targets in the 2016 United Nations Political Declaration on Ending AIDS. UNAIDS works towards ensuring that women and girls everywhere have their rights fulfilled and are empowered to protect themselves against HIV and that all women and girls living with HIV have immediate access to treatment and care.

Civil society has played an important role in the response to HIV since the very beginning of the epidemic, calling for access to life-saving medicines, demanding the rights of people living with and affected by HIV and providing critical HIV prevention, care and support. Without civil society, fewer HIV services would be available, particularly to marginalized populations and to people in remote areas.

On a recent visit to Kenya, the Executive Director of UNAIDS, Michel Sidibé, met with members of civil society organizations in Kenya to talk about how to support, reinforce and expand the contribution of civil society towards ending the AIDS epidemic.

“We need a new narrative, not only about HIV treatment but how to restore people’s dignity,” said Mr Sidibé. “We need to demonstrate that no one can better deliver on universal health care than civil society organizations.”

Community responses to HIV result in better health, foster community resilience and are cost-effective. Civil society also needs to be fully involved in decision-making processes to help its work in ensuring respect for human rights, achieving gender equality and diversity and ensuring that no one is left behind.

Wanjiru Mukoma, the Executive Director of Liverpool VCT Health, a Kenyan civil society organization that provides HIV prevention, testing, care and treatment services, facilitated the meeting. She said, “We are at the point where we must frame the HIV agenda. The HIV response cannot be effective without a vibrant civil society.”

The participants asserted that the focus must shift from building the capacity of civil society to meaningful investment in existing capacity in order to increase the impact of its work in the AIDS response.

“Civil society organizations have done a lot of work, but credit does not go to us. We need support to document our work and build our capacity to establish robust monitoring systems of our contribution to Fast-Track,” said Dorothy Onyango, the Executive Director of Women Fighting AIDS in Kenya.

Ensuring the meaningful participation of young people in civil society spaces was also stressed. “We do not want the young at heart to represent us; we are asking for spaces to represent ourselves. We have capacity,” said Joyce Amondi, a young person at the meeting.

During the day, Mr Sidibé also met with Sahle-Work Zewde, the Director-General of the United Nations Office at Nairobi, to discuss sustainability planning to maintain and accelerate the remarkable results that Kenya has achieved towards achieving the 90–90–90 targets, whereby, by 2020, 90% of people living with HIV know their HIV status, 90% of people who know their HIV-positive status are accessing treatment and 90% of people on treatment have suppressed viral loads. They agreed that decentralizing service delivery systems, cutting user fees and stopping the use of falsified medicines would be transformative for the AIDS response in Kenya.

UNAIDS is committed to the meaningful and inclusive participation of civil society at all levels of the AIDS response. By integrating community responses into national AIDS plans and Global Fund to Fight AIDS, Tuberculosis and Malaria concept notes, including budget allocations, UNAIDS supports the funding, development, implementation and monitoring of community service delivery programmes, civil society organizations, advocacy organizations and community networks.

UNAIDS brings civil society organizations together with governments and donors to develop plans, strategies and programmes, review legal and policy environments and respond to emergency and human rights issues. UNAIDS supports civil society organizations to engage in the AIDS response in a coordinated way that respects diverse voices and actions, facilitating civil society advocacy and community-based service delivery.

Gender-based violence is one of the most persistent violations of human rights across the globe. According to the World Health Organization, about one third of women worldwide have experienced violence. Intimate partner violence increases the risk of HIV, in some regions by up to 1.5 times. Among marginalized populations, a high prevalence of violence is linked with higher rates of HIV infection, in particular among transgender women.

In Kenya, a recent study found that 32% of young women aged 18–24 years and 18% of their male counterparts reported experiencing sexual violence before the age of 18. Gender-based violence reduces the bargaining power to negotiate safer sex, stay on treatment or remain in school.

To shine a light and galvanize action to end gender-based violence in Kenya, the United Nations Population Fund (UNFPA), together with the Kenya Medical Women’s Association and the Kenya Women Judges Association, and partners, launched the Tuongee (Let’s Talk) Campaign on 25 May at an event hosted by Nicolas Nihon, the Ambassador of Belgium to Kenya and UNFPA.

Speaking at the launch, Michel Sidibé, the Executive Director of UNAIDS, said, “Gender-based violence and HIV are intertwined epidemics. If we are to transform either, we must address the structural barriers that drive both.” He spoke about the need to equip young women with the skills and capacities to make informed decisions about their health and underscored the critical importance of engaging boys and men early to change behaviours and challenge norms that allow gender-based violence to persist.

A young survivor of gender-based violence from Kisumu, a port city on Lake Victoria, made a moving and powerful testimony, reminding participants of the critical importance of the campaign and the need to speak up to help survivors to accept and heal. She also urged parents to talk to their children about violence and to support them in speaking out.

Mr Nihon underlined the commitment of the Government of Belgium to combat all forms of gender-based violence and commended the work of the Kenya partners in supporting the survivors.

“Gender-based violence is, unfortunately, not an uncommon phenomenon against women and girls,” said Ademola Olajide, UNFPA Representative to Kenya. “Care and support for the survivors is critical to eliminate gender-based violence and requires a multisectorial approach.”

The participants affirmed that community-level action combined with global advocacy and structural change can lead to change and that there is much potential to build on the good work already done to accelerate results.

Achieving gender equality, advancing women’s empowerment and fulfilling the sexual and reproductive health and rights of women and girls are central to UNAIDS’ work and crucial to reaching the Sustainable Development Goals and achieving the targets set in the 2016 United Nations Political Declaration on Ending AIDS.

UNAIDS, together with a wide range of partners, including women living with HIV and women’s organizations, are working to ensure that women and girls everywhere have their rights fulfilled and are empowered to protect themselves against HIV and that all women and girls living with HIV have immediate access to HIV treatment and care.